Quality and safety of youtube videos on epilepsy-specific exercises: A systematic analysis using a novel evaluation tool
Küçük Resim Yok
Tarih
2026
Dergi Başlığı
Dergi ISSN
Cilt Başlığı
Yayıncı
W B Saunders Co Ltd
Erişim Hakkı
info:eu-repo/semantics/closedAccess
Özet
Objective: Exercise benefits people with epilepsy (PWE) by reducing seizure frequency, improving quality of life, and fostering social participation. YouTube, a popular platform for health information, hosts numerous exercise videos for PWE, yet their quality, reliability, and safety remain unevaluated. This study aimed to evaluate the quality, reliability, and engagement of YouTube videos on epilepsy-specific exercises using the novel Epilepsy Content Evaluation (ECE) tool, alongside DISCERN, JAMA, and Global Quality Score (GQS). Method: A systematic search conducted on July 22, 2025, identified 45 English-language YouTube videos, which were independently evaluated by two neurologists using the ECE, DISCERN, JAMA, and GQS tools. Video characteristics, publisher sources, and engagement metrics were analyzed. Results: Most videos (53.3%) were rated low quality (ECE score 0-7), with only one (2.2%) achieving high quality (ECE score 12-15). The Safety and Risk Management subdomain scored lowest (median: 2, IQR: 1.25), reflecting inadequate attention to seizure triggers and supervision. Athlete-targeted videos outperformed general-population videos in quality (p < 0.05). View counts negatively correlated with ECE scores (r = -0.375 to -0.712, p < 0.05). ECE demonstrated strong convergent validity with DISCERN (Phi = 0.606, p = 0.035). Conclusion: In conclusion, most YouTube videos on epilepsy-specific exercises lack clinical reliability and safety guidance, posing potential risks for PWE. The ECE tool effectively identifies these deficiencies, enabling clinicians to recommend ILAE-aligned videos to enhance patient safety. Curated, evidence-based digital resources could empower millions of PWE to engage in safe physical activity, reducing stigma and improving health outcomes.
Açıklama
Anahtar Kelimeler
Epilepsy, Exercise, Youtube, Patient Safety, Content Evaluation, Ece
Kaynak
Seizure-European Journal of Epilepsy
WoS Q Değeri
Q2
Scopus Q Değeri
Q2
Cilt
136
