Quality and safety of youtube videos on epilepsy-specific exercises: A systematic analysis using a novel evaluation tool

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dc.contributor.authorGonulal, Yakup
dc.contributor.authorDenizci, Tuba
dc.contributor.authorYesilkaya, Mehmetcan
dc.contributor.authorAgascioglu, Eda
dc.contributor.authorAykac, Serdar
dc.contributor.authorSingin, Rabia Hurrem Ozdurak
dc.date.accessioned2026-06-19T06:39:44Z
dc.date.available2026-06-19T06:39:44Z
dc.date.issued2026
dc.departmentMalatya Turgut Özal Üniversitesi
dc.description.abstractObjective: Exercise benefits people with epilepsy (PWE) by reducing seizure frequency, improving quality of life, and fostering social participation. YouTube, a popular platform for health information, hosts numerous exercise videos for PWE, yet their quality, reliability, and safety remain unevaluated. This study aimed to evaluate the quality, reliability, and engagement of YouTube videos on epilepsy-specific exercises using the novel Epilepsy Content Evaluation (ECE) tool, alongside DISCERN, JAMA, and Global Quality Score (GQS). Method: A systematic search conducted on July 22, 2025, identified 45 English-language YouTube videos, which were independently evaluated by two neurologists using the ECE, DISCERN, JAMA, and GQS tools. Video characteristics, publisher sources, and engagement metrics were analyzed. Results: Most videos (53.3%) were rated low quality (ECE score 0-7), with only one (2.2%) achieving high quality (ECE score 12-15). The Safety and Risk Management subdomain scored lowest (median: 2, IQR: 1.25), reflecting inadequate attention to seizure triggers and supervision. Athlete-targeted videos outperformed general-population videos in quality (p < 0.05). View counts negatively correlated with ECE scores (r = -0.375 to -0.712, p < 0.05). ECE demonstrated strong convergent validity with DISCERN (Phi = 0.606, p = 0.035). Conclusion: In conclusion, most YouTube videos on epilepsy-specific exercises lack clinical reliability and safety guidance, posing potential risks for PWE. The ECE tool effectively identifies these deficiencies, enabling clinicians to recommend ILAE-aligned videos to enhance patient safety. Curated, evidence-based digital resources could empower millions of PWE to engage in safe physical activity, reducing stigma and improving health outcomes.
dc.identifier.doi10.1016/j.seizure.2026.02.002
dc.identifier.endpage59
dc.identifier.issn1059-1311
dc.identifier.issn1532-2688
dc.identifier.orcid0000-0002-1532-7212
dc.identifier.pmid41679102
dc.identifier.scopus2-s2.0-105033350645
dc.identifier.scopusqualityQ2
dc.identifier.startpage51
dc.identifier.urihttps://doi.org/10.1016/j.seizure.2026.02.002
dc.identifier.urihttps://hdl.handle.net/20.500.12899/5738
dc.identifier.volume136
dc.identifier.wosWOS:001691624200001
dc.identifier.wosqualityQ2
dc.indekslendigikaynakWeb of Science
dc.indekslendigikaynakScopus
dc.indekslendigikaynakPubMed
dc.language.isoen
dc.publisherW B Saunders Co Ltd
dc.relation.ispartofSeizure-European Journal of Epilepsy
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanı
dc.rightsinfo:eu-repo/semantics/closedAccess
dc.snmzKA_WOS_20260612
dc.subjectEpilepsy
dc.subjectExercise
dc.subjectYoutube
dc.subjectPatient Safety
dc.subjectContent Evaluation
dc.subjectEce
dc.titleQuality and safety of youtube videos on epilepsy-specific exercises: A systematic analysis using a novel evaluation tool
dc.typeArticle

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